Rare Disease Day
Rare Disease Day is a global observance dedicated to raising awareness about rare diseases and their impact on patients' lives. Celebrated on the last day of February each year, this […]
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Rare Disease Day is a global observance dedicated to raising awareness about rare diseases and their impact on patients' lives. Celebrated on the last day of February each year, this […]
A support group for parents who are either coping with a child's AVM diagnosis or the loss of a child due to an AVM rupture. Held the third Wednesday of […]
Get ready for an out-of-this-world experience with our 'Eclipse Escapade'! Thanks to the generous donation from Greene Eyes Optometrists, we've got Solar Eclipse viewing Kits for our Pediatric Stroke Community. […]
Pediatric Stroke Awareness Month is an essential initiative spotlighting a medical concern that many are unaware of: children, even infants, can and do experience strokes. While strokes are often associated […]
Our shirts feature a special QR code that links directly to the AVM Alliance website story page - highlighting the real faces and stories behind this condition. EVERY SHIRT TELLS […]
When your child is diagnosed with a brain vessel disease or suffers a stroke, life changes in an instant. The questions, the fear, the isolation—it’s overwhelming. But you don’t have to face it alone. This group was created by parents, for parents—to offer comfort, connection, and community to those walking this road. Whether your child […]
Check out our NEW monthly Webinar! In August, we’ll kick things off with a discussion on executive function, school support, and how AI tools may help children manage cognitive challenges, […]
When your child is diagnosed with a brain vessel disease or suffers a stroke, life changes in an instant. The questions, the fear, the isolation—it’s overwhelming. But you don’t have to face it alone. This group was created by parents, for parents—to offer comfort, connection, and community to those walking this road. Whether your child […]
SEPTEMBER WEBINAR: ASK THE EXPERT - DR. MESHA MARTINEZ The nation’s only pediatric radiologist with dual training in adult and pediatric neurointerventions and a member of AVM Alliance’s Medical Advisory Board. She is a nationally recognized leader in pediatric neurointerventions, patient advocacy, and advancing care for brain vessel disease. This open forum webinar gives you […]
When your child is diagnosed with a brain vessel disease or suffers a stroke, life changes in an instant. The questions, the fear, the isolation—it’s overwhelming. But you don’t have to face it alone. This group was created by parents, for parents—to offer comfort, connection, and community to those walking this road. Whether your child […]
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