Event Series Healing Hearts Virtual Meeting

Healing Hearts Virtual Meeting

Healing Hearts: AVM Alliance Support Group is an international support group that meets once a month via zoom for parents whose child has received a brain AVM diagnosis or  whose child has gained their wings from a Brain AVM rupture. The meeting is always on the third Wednesday of the month, at 7pm CST / […]

Aneurysm Awareness Month

Aneurysm Awareness Month is a crucial initiative aimed at raising awareness about aneurysms, potentially life-threatening conditions that can occur anywhere in the body but are most commonly identified in the brain or the aorta. An aneurysm is a bulging, weakened area in the wall of a blood vessel, and if it ruptures, it can lead […]

2023 RARE Advocacy Summit

@GlobalGenes RARE Advocacy Summit is taking place September 19-21 in San Diego and will bring together one of the largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. Get ready to connect, learn, and inspire! Learn more here: https://go.globalgenes.org/share-ras #GGSummit #CareAboutRARE #RAREDiesase #GlobalGenes #SanDiego #RAREAdvocacySummit #GGSummit23  

TAAFWalk Over the Edge

TAAFWalk Over the Edge is a 2-day celebration comprised of our 18th Annual Aneurysm and AVM Awareness Walk, TAAFWalk, on 9/24 and our first-ever, Over the Edge urban rappelling event on 9/23. More Info: AVM Alliance & TAAFWALK 2023

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