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The AVM Alliance is a 501(c)(3) charity dedicated to filling the needs of the AVM community and supporting other charitable and research organizations who make a difference.Â
The AVM Alliance is a 501(c)(3) charity dedicated to filling the needs of the AVM community and supporting other charitable and research organizations who make a difference.Â
Explore our collection of resources tailored to empower those facing the challenges of AVM with information and guidance.
Discover helpful resources for understanding and coping with AVM challenges
Access specialized support to empower you as a parent of a child diagnosed with AVM.
Resources tailored specifically for medical professionals to provide thier patients.
AVM Alliance is devoted to supporting families of children affected by Arteriovenous Malformation (AVM), Aneurysms, and other brain vessel diseases, as well as those impacted by Traumatic Brain Injury and Stroke. We aim to foster a community centered on assistance and solidarity. Our mission is multifaceted: to help spread awareness that “Stroke has no age limit”, to reassure children dealing with these conditions that they’re not alone, to offer essential resources that guide others on this journey, and to raise awareness as we collectively strive for a cure.
” For I know the plans I have for you, plans to give you hope and a future.”
-Jeremiah 29:11
Welcome to the AVM Alliance, where we offer comprehensive support to families, children, and adolescents coping with an AVM diagnosis.
Learn more about the challenges and intricacies of this condition, and broaden your understanding of AVMs.
Video brought to you by:
Boston Children's Hospital
Discover AVM Alliance: Warrior stories where we share the remarkable journeys of children who have faced the challenges of Pediatric Brain Vessel Disease with unwavering courage.
The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a focus on Pediatric Stroke, Brain AVM / Aneurysm (Brain Vessel Disease) and Traumatic Brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey.Â
Listen to the latest episode now, or browse all our episodes on our podcast page.
The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.
Welcome to AVM Alliance, where we delve into the world of pediatric stroke and brain disorders with honest conversations and valuable insights for our community. In this episode, host Raylene Lewis shares her experiences from the International Pediatric Stroke Organization 2024 Congress and exciting updates from our AVM Alliance community events. Join us as we explore the transformative power of therapy in pediatric stroke recovery with special guest Anna Haertling Clearman, an occupational therapist from UTHealth. Discover the 'Therapy Trifecta'—occupational therapy, physical therapy, and speech therapy—and learn about cutting-edge treatments and research programs making a difference in pediatric stroke rehabilitation. Whether you're a parent, caregiver, or advocate, this episode offers valuable information and encouragement as we navigate the journey of pediatric stroke together. Remember, you're never alone on this journey.
Pediatric Stroke Clinic Information
Webpage:https://www.avmalliance.org
Go Fund Me: https://www.gofundme.com/f/avmalliance
Our FB Page: https://www.facebook.com/AVMAlliance
Our FB Group: https://www.facebook.com/groups/325321586185434
Instagram: https://www.instagram.com/avmalliance/
TikTok: https://www.tiktok.com/@avmalliance
YouTube: https://www.youtube.com/@avmalliance
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
Twitter: https://twitter.com/avmawareness
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