Rare Disease Day

Rare Disease Day is a global observance dedicated to raising awareness about rare diseases and their impact on patients’ lives. Celebrated on the last day of February each year, this event brings together patients, families, caregivers, medical professionals, researchers, and policymakers to highlight the challenges faced by those living with rare diseases. Due to their uncommon nature, these conditions often go undiagnosed or misdiagnosed, leading to a delay in appropriate treatments and interventions. The lack of scientific knowledge and available treatments compounds the hardships faced by patients. Rare Disease Day underscores the need for research, collaboration, and the development of new treatments to improve the quality of life for those living with these conditions. The ultimate goal is to foster a global community that actively supports and advocates for those affected by rare diseases.