@GlobalGenes RARE Advocacy Summit is taking place September 19-21 in San Diego and will bring together one of the largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, […]

TAAFWalk Over the Edge is a 2-day celebration comprised of our 18th Annual Aneurysm and AVM Awareness Walk, TAAFWalk, on 9/24 and our first-ever, Over the Edge urban rappelling event on 9/23. […]

Join the Joe Niekro Foundation’s virtual 5K! Walk, Run, Cycle or Roll to help us raise AVM and aneurysm awareness, fund medical research and connect patients and caregivers with the […]

Brain AVM Awareness Month is dedicated to increasing knowledge and understanding of arteriovenous malformations (AVMs) in the brain, a rare but critical condition. A brain AVM is an abnormal tangle […]

AVM Alliance, a 501(c)(3) non-profit, will be holding our annual fundraiser event during the entire month of October which is also AVM Awareness month. We rely solely on generosity during […]

National Epilepsy Awareness Month is observed each November to spotlight the challenges and triumphs of the epilepsy community. Epilepsy, a neurological disorder marked by recurrent, unprovoked seizures, affects millions worldwide, […]

Rare Disease Day is a global observance dedicated to raising awareness about rare diseases and their impact on patients' lives. Celebrated on the last day of February each year, this […]

Pediatric Stroke Awareness Month is an essential initiative spotlighting a medical concern that many are unaware of: children, even infants, can and do experience strokes. While strokes are often associated […]