AVM Warrior

Nathanael’s AVM journey started on September 17th, 2021 at 9 years old when he experienced an intense pain between his eyes at the bridge of his nose followed by vomiting, and uncontrollable body movements that appeared like seizures. He was diagnosed with a grade 3 AVM that had ruptured causing a catastrophic bleed into the inner most parts of his frontal lobe leading to a hemorrhagic stroke.

Three brain surgeries, a ventilator, a shunt, a tracheostomy, a G Tube, a diaphragm pacer and 249 days in-patient later we have been home since July 2022. We are doing in-home physical therapy, occupational therapy and speech therapy including using an AAC device and a stander to regain communication, core strength and mobility. It has been a long road for us but we have seen pieces of him return slowly and have hopes it will continue.