Healing Hearts: AVM Alliance Support Group is an international support group that meets once a month via zoom for parents whose child has received a brain AVM diagnosis or  whose […]

Aneurysm Awareness Month is a crucial initiative aimed at raising awareness about aneurysms, potentially life-threatening conditions that can occur anywhere in the body but are most commonly identified in the […]

@GlobalGenes RARE Advocacy Summit is taking place September 19-21 in San Diego and will bring together one of the largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, […]

TAAFWalk Over the Edge is a 2-day celebration comprised of our 18th Annual Aneurysm and AVM Awareness Walk, TAAFWalk, on 9/24 and our first-ever, Over the Edge urban rappelling event on 9/23. […]