Healing Hearts: AVM Alliance Support Group is an international support group that meets once a month via zoom for parents whose child has received a brain AVM diagnosis or  whose child has gained their wings from a Brain AVM rupture. The meeting is always on the third Wednesday of the month, at 7pm CST / […]

@GlobalGenes RARE Advocacy Summit is taking place September 19-21 in San Diego and will bring together one of the largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. Get ready to connect, learn, and inspire! Learn more here: https://go.globalgenes.org/share-ras #GGSummit #CareAboutRARE #RAREDiesase #GlobalGenes #SanDiego #RAREAdvocacySummit #GGSummit23